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The experiences of sibling dyads impacted by albinism in Africa: An interpretive description study
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Author (aut): Buyco, Meghann Angelie B.
Thesis advisor (ths): Reimer-Kirkham, Sheryl
Degree committee member (dgc): Astle, Barbara
Degree committee member (dgc): Boldut, Estera Aurora
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Degree granting institution (dgg): Trinity Western University. SGS
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The bond between siblings is the longest relationship one may have with another individual, but the perspectives and experiences of siblings impacted by albinism have not been fully explored. In parts of Africa, persons with albinism face multiple challenges relating to their vision impairment and sun sensitivity compounded by stigma, discrimination, and safety concerns stemming from deeply rooted spiritual and cultural beliefs and misunderstandings about albinism. Applying an Interpretive Description qualitative design, I explored the experiences of siblings impacted by albinism in five countries in Africa through individual and dyadic interviews with seven dyads. I employed a human rights, family-centred, and disability lens to derive four themes: (1) Internalizing Processes; (2) Normalizing Responses; (3) Stigmatizing Experiences; and (4) Encompassing Support. These findings highlight the importance of a strong family system and the need to address the concerns that persons with albinism experience to support them and their family. |
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English
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The experiences of sibling dyads impacted by albinism in Africa: An interpretive description study
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3601813
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