The Subjective Experience of Early Onset Alzheimer’s Disease: Using Online Communities to Combat Social Isolation.

This thesis explores the ways people with early onset Alzheimer’s disease (EOAD) use online communities to address social isolation. Netnography and interpretive description directed the qualitative analysis of archived discussion threads (n=569) within an online forum involving 40 participants with EOAD. Online interaction fostered social connection and redefined life following diagnosis. Textual discourse focused on normalizing the experience of living with EOAD, promoting a community culture of belonging, and developing coping mechanisms intended to enhance self-care and preserve independence. Members found purpose in using the forum as a platform to empower users, or through learning about advocacy roles outside of the online environment. Technological concerns and caregiver involvement surfaced as potential factors impacting online interaction. Overarching findings were conceptualized as benefits offered through the communication medium or motivated by community members. Attention was drawn to technical and practical considerations that focused on enhancing the social experience and supporting overall well-being.